Understand how the service at Casa dos Raos works

seeking a diagnosis can be a lonely path, “but in the house of the rare, this journey is managed with care and organization,” says Franciele Trapp, coordinator of the host sector, the medical superintendence of the Raros House (CDR). The manager explains how the entity's aide process works, based in Porto Alegre/RS.

first steps - reception begins with the record of interest, even without medical referral. Upon evaluation of the clinical team, the case is confirmed as eligible.

official service channels
Phone: (51) 3455-0000
E-mail: contato@cdr.org.br
Website: cdr.org.br/registro-de-interesse

It is important to send full name, document and clinical history, including suspicious exams and diagnoses.

it is also possible to access CDR services from:

referral via State Health Secretariat (GERCON)
spontaneous demand, through online form completed by patient, family or professional

all cases undergo clinical evaluation. When necessary, the team contacts you to clarify information or request complements.

service - the house of the rare has a team formed by:

geneticist doctors, clinical and pediatrician

Social worker

psychologist

speech therapist

physiotherapist

Nutritionist

dentist

nurse and nursing technique

range -as Franciele highlights, “people from anywhere in the country, and even abroad, can access CDR services.” The house also acts with telemarketing, continuing education and support for the local health network, ensuring that the patient is careful. “The journey of those who live with a rare condition is full of challenges, but with welcome, information and a committed network, it is possible to walk more safely,” suggests the manager.