Christmas, New Year and dietary restrictions: adjustments can make supper more inclusive

The holidays are synonymous with a full table, but for people with rare diseases that require restrictive diets, the moment can bring risks. Casa dos Raros nutritionist, Mariana Lima Scortegagna, explains. "Consuming a food that is not part of the diet can have serious consequences for the treatment. Furthermore, there is the social aspect, as the patient may feel excluded for not fully participating in the collective meal", he says. 

According to her, the most dangerous foods vary depending on the condition, but are usually present in typical dishes. "Meats, cheeses, eggs, milk-based desserts and processed foods with hidden additives can be harmful for some patients. In phenylketonuria, for example, even small amounts of animal protein are already harmful. In galactosemia, on the other hand, any dairy derivative should be avoided", he highlights.

The good news is that there are alternatives. “Today there are plant-based milks, gluten-free preparations and recipes with a low protein content that replace traditional ingredients without losing flavor”, advises Mariana. It reinforces the importance of planning. “Thinking out the menu in advance and testing recipes ensures more safety”, he suggests.

“When the family prepares an adapted menu, the patient feels like they are part of the celebration"

Another essential precaution is to avoid cross-contamination. "It's not enough to remove the ingredient, you have to prepare the dish from scratch without it. And always check the labels, as some processed products contain prohibited traces", he warns.

More than nutrition, care is also inclusion. "When the family prepares an adapted menu, the patient feels like they are part of the celebration. Having a safe option on the main table makes all the difference", he highlights.

For Mariana, parties can also be educational. "By adapting a dish and explaining the reason, family and friends come to better understand the reality of those living with a rare disease. This expands the support network and strengthens bonds", he maintains.