Psychology: How to deal with the diagnosis of a rare disease?

receiving the diagnosis of a rare disease is always a striking moment, loaded with uncertainty and need for adaptation. The challenge, according to psychologist Daniele Lima Rocha, is to welcome emotions and seek lighter paths. The psychologist stresses that the patient should not be charged for immediate answers, as the assimilation process takes time and should be respected.
wake up with the professional, seeking reliable information with the health team helps to reduce anxiety and prevent exposure to alarmist or inaccurate content. Already family members face the so -called "symbolic mourning" for expectations, which need to be reviewed. “Recognize their own limits, welcome feelings and seek psychological support or support groups protects mental health and strengthens family bonds,” he says.

"the assimilation process takes time and must be respected"

Share - Therefore, creating a solid support network, with family, friends, specialized groups and mental health professionals, makes the process less lonely and more welcoming. Likewise, “sharing doubts and experiences helps relieve stress and reinforces the feeling of belonging,” he adds. Finally, focusing on the present and living one day at a time is a simple strategy, but, according to Daniele, as “helps reduce emotional overload and contributes to the patient and family to face challenges with more balance and safety”, he concludes.