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Who we are

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Goals

Guarantee Qualified care and no direct costs to the patient;

Welcoming patients with the objective of shortening the journey between the onset of symptoms and the diagnosis of the disease, minimizing sequelae for the delay at the beginning of treatment, when available;

Perform each service aimed at the patient's needs, using telemedicine tools when necessary, and involving multiprofessional team and specialized examinations for subsequent conduction of clinical management in centers near the patient's residence; /P>

Promote the development of the area through more accurate diagnoses, innovative research and advanced therapies for an increasing number of rare diseases;

Disseminate Information, perform educational activities and provide training for health professionals in the area of rare diseases, amplifying the reach of our initiatives.